It seems as though our little princess has a new lease on life...and I guess from a practical standpoint, she does!
Zoe went from laying in my arms most of the day to running away from her big brother, Bryce...laughing and screaming all the way. Mostly we do the same snatch and run scenario all day long...she steals the remote from him while he pretends to not see her...he "notices" and starts trying to get it back. Too bad I can't show you some of the great videos we've captured...but that would take someone far more tech-savvy than I...so you'll have to use your imagination. I'm so thankful that our big kids are fully engaging with our little ones...it's making a huge difference during this transition time.
Anyway, I wanted to give you a quick update on little Z. Dr. Edens wanted us to drop in and see him while we were already up at the U this past Monday for Zane. She is back up to 20 lbs., and her sats were 81...woo hoo! (It was pretty funny to see the nurse's reaction when I shouted that exact phrase...because they'd typically be hospitalizing a patient for such low numbers...and then to watch her face when I said her number was 51 before the cath...shock and awe, baby...shock and awe.)
Dr E said she was looking really good...even the liver seemed to be getting back where it should be...which apparently is a good sign. :) He mentioned that he and the other "big wigs" have been chatting about Zoe, and they felt it best to move up her follow-up cath to 4 weeks instead of 8. "We don't want to miss this window of opportunity for surgery." This doesn't mean that it's a definite that the pressures will be low enough for her to have the surgery...just that they want to catch her little body on the "upswing" as opposed to the body leveling out and beginning to deteriorate again into heart failure. We've only put a small bandaid when a full body cast is needed. (That's my own interp...don't blame the medical profession.)
We had her 2nd cath scheduled for the last week in May...now it's been moved up to May 1st...the day after her 3rd birthday. This time we'll be able to fit everything in on 1 day and will likely not need to stay the night at all...let alone in the PICU. Super excited about that.
They've also scheduled us to meet with the surgical team the following Monday, May 6th, to discuss the cath, her status, and the plan of action...with surgery potentially being as soon as that same week. Selfishly, I'm praying they'll wait until the following week because my niece, Heather, is getting married that Saturday, and I've never missed any family member's wedding. This will also be the first...and likely only time this year...that I'll be able to see my family. Obviously, if it's what they deem necessary, we'll go with it...but like I said, selfishly, I'm hoping to spend the day with the Wagenschutz Circus! :) The twins would never be the same...
Incidentally, Zane weighed in at 27 lbs...so he's bulking up fast! Must be "cookin' with peanut oil"! If you don't get that reference, we should just probably end our friendship right here. No hard feelings. Just walk away...and we'll both be "happy, happy, happy!"
Lastly, we've been concerned about Zoe these
past few days. She's back to falling asleep at the drop of a hat, won't do anything all day, barely eats, and is just extra fussy. We've dropped the dairy for both kids because we've been told that it's pretty common for Asian kiddos to be lactose intolerant. We're hoping that helps to some degree, but the doc is pretty convinced she likely caught a viral bug of some sort. Great. We're back to quarantine.
Regardless, we're praying for yet another miracle on May 1st. We're also thankful, yet again, for the strength, faith, and endurance to face another day with our family of 8. I'm often startled to think..."Good grief...I have 6 kids...Duggars, we need to talk."
No comments:
Post a Comment